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Uncertain Futures - 9781118909713

Un libro in lingua di Ignasi Clemente edito da Blackwell Pub, 2015

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This book examines children and young people's attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. Focusing on one hospital in Barcelona, Spain. Clemente examines the cat-and-mouse game between the children and young people who persistently ask questions, and the adults who attempt to protect them from potentially distressing news.

Doctors and parents use six strategies that are often contradictoryùincluding deception, complete non-disclosure, and partial disclosureùto regulate communication according to the changing circumstances of a specific child's cancer trajectory. A fundamental objective of this communication regulation is to prevent the multiple uncertainties associated with cancer and its treatment from becoming the central focus of talk and social life. Clemente also highlights that containing these uncertainties requires an institutional mandate to practice hope and optimism, to hide negative emotions, and to curtail talk about the future. Clearly and compellingly written, Clemente provides new models for examining cancer communicat ion in this fascinating study that provides ethnographic case studies of childhood cancer patients in Spain, using children's own words.

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