The Down Syndrome Transition Handbook - 9781890627874

Families of children with Down syndrome report that facing their child's transition from school to adult life is as scary as their child's diagnosis was years earlier. The loss of the services and routines of the education system -- teachers, IEPS, friends, activities, learning opportunities – is huge and parents often don't know where to go to find services and support to help their child move into adulthood.As the only book written by a parent-professional to speak directly to parents, THE DOWN SYNDROME TRANSITION HANDBOOK answers parents' most pressing questions. The author writes from experience as a parent who helped her now adult son with Down syndrome build a successful and productive life, and as a professional who has helped hundreds of families tackle transitions issues. In a frank conversation style, Simons addresses: What will my child do during the day? Should she work, continue her education, or pursue an interest or passion? Will my child live with me for the rest of my life? What's going to happen to him if something happens to me? How do I help my son become as independent as possible? How will I pay for the supports my child needs? She also offers suggestions and advice in areas that families haven't even considered, such as the importance of starting early. This comprehensive guide provides detailed, realistic information on all aspects of planning for the future: Developing a vision statement Types of adult services and delivery models Self – determination and advocacy Planning while still in middle school and high school Diploma versus certificate track Building work experience Post secondary options Types of testing and assessments Legal issues (everything from guardianship to voting rights) Financial issues (everything from food stamps to record keeping) World of work – how to find it, different options, incentives for businesses Residential options and how to plan for a move Health & Wellness – everything from food choices to dealing with peer pressure The role of family and friends Technology – where it can help and when it can hurt Transportation – public transportation or feasibility of a driver's license Loaded with practical advice and authoritative expertise, this guide will be the transition bible for families of children in middle and high school. THE DOWN SYNDROM TRANSITION HANDBOOK gives parents the tools and confidence to get started and continue to build a secure, happy, and fulfilling future for their son or daughter.